The day started at 3am when Sofia came to my room with nose bleed again. Gosh!!! Can we get over it? Maybe because yesterday we didn't do saline spray every 2 hours, nor drink enough? I don't know. I ended up holding her nose for almost an hour before letting her back to sleep. I … Continue reading Day 57: finding ways to record memory
We had a good day at home with me starting upside down view. Since quarantine, I've been doing 20-30 min yoga everyday, most of the day to stretch after the jog, somedays a bit more challenging. I can feel I am getting stronger. I wake up around 4:30am most of the days. Spend 30-45 min … Continue reading Day 56: Dressing up
Another day nose bleed free!!! Yesterday morning I was jogging in my living room (yes, that's how desperate I am to get some sweat) while listening to podcast, finding my zen, the girls came out and the first phrase Sofia said was about complaint! And I told her, I don't want to hear any complaint … Continue reading Day 55: complaint free day
Another day without nose bleed! YAY! I think keeping her nose hydrated really helps. If I can keep her bleed free for 7 days using this method, then I know she is fine. Yesterday evening I was tired mentally as it involved a lot of deep thinking at work. While the girls were reading in … Continue reading Day 54: I want to lock myself up
That's my feeling after full day of no nose bleed!!!! What changed? Our new system consists of: saline spray every 2 hours hydration throughout the day No AC directed to the face We will continue with this for 1 more day, then maybe reduce saline to every 3 hrs. I really hope it was caused … Continue reading Day 53: no bleed day! YAY
Our New Journey 